Tag Archives: Creatine Transport Defect

“Realignment” – Nathan Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather.  If you caught my last post, I discussed the expectations […]

“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis, he was diagnosed with infantile scoliosis due to his hypotonia […]

“The Parker Family” – Melissa “There have been angels in my life….” This was written to me on a thank you note by the wife of a friend who passed […]

“Our Journey” – Kelly When Trenton was born in New York, he weighed 7 lbs 2 ounces. Before we left the hospital, he dropped to 6lbs 12 ounces, by our […]