Tag Archives: Creatine Transporter Defect

“Let It Be” – Amy As a mom of a child with a rare condition, particularly of my Ben who has Creatine Transporter Deficiency (CTD), it’s so easy to let […]

“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling to accomplish a simple task which others seem to be […]

“Because” – Amy At the end of the year, I like to reflect back so I can look forward and plan for the new year. 2017 has been a challenging, […]

“Our Journey” – Kelly When Trenton was born in New York, he weighed 7 lbs 2 ounces. Before we left the hospital, he dropped to 6lbs 12 ounces, by our […]