“2020 Global Genes LIVE” – Faith
“2020 Global Genes LIVE” – Faith I recently joined the ACD as the new Programs Coordinator, and as part of…
“Are You a 21st Century Pioneer?” – Nancy
“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or…
Creatine Decoded: Behavior Support and the First ACD Webinar for Parents
Creatine Decoded: Behavior Support and the First ACD Webinar for Parents This essay was written by Celeste Graham, ACD Director…
“CLOSED.” – Nancy
“CLOSED.” – Nancy “School closed,” says Sam for the 14th time today. I take a deep breath. If I don’t…
“Progress” – Lacy
“Progress” – Lacy My son recently said my name for the first time. I don’t mean he called me Mommy….
“Our Journey Into Medical Marijuana for Epilepsy” – Nancy
“Our Journey Into Medical Marijuana for Epilepsy” – Nancy The following is our journey into using Medical Marijuana (MMJ) with…
“I Wish I Had a Brother” – Janet
“I Wish I Had a Brother” – Janet I wanted to talk a bit about something that my son said…
Creatine Decoded: Pharmacochaperoning & CTD Research Participation
Creatine Decoded: Pharmacochaperoning & CTD Research Participation This essay was written by Erin Coller with the support of Laura Trutoiu,…
“GAMT Newborn Screening Video” – Heidi
“GAMT Newborn Screening Video” – Heidi I recently had the privilege of sharing my family’s GAMT story with a group…
“A Look into My Experiences at Rare New England” – Celeste
“A Look into My Experiences at Rare New England” – Celeste If you’ve ever wondered how to get involved with…