2023 CCDS Scientific + Patient Virtual Conference
Association for Creatine Deficiencies invites you to attend the 2023 Cerebral Creatine Deficiency Syndromes (CCDS) Virtual Conference. The goal of this meeting is to share the latest CCDS research and advancements.
Who should attend?
The Cerebral Creatine Deficiency Syndrome (CCDS) community of patients, caregivers, scientists, clinicians, biotech leaders, and supporters are encouraged to attend.
What will be covered?
Friday, August 18 | Caregiver Session | Tentative Time 12:00pm-3:00pm Pacific
This special CCDS Caregiver Session will focus on parent support in the following categories: supporting sibling relations and the non-CCDS sibling experience, sleep training for CCDS patients, and identifying and managing CCDS behavior challenges.
Friday & Saturday, August 25 & 26 | Main Sessions | Tentative Times 8:00am-2:00pm Pacific
The main sessions will focus on research related to the three CCDS- CTD, GAMT, and AGAT. The full agenda is coming soon! View past conference recordings here.
How can I participate?
To attend the meetings, please register using the form below. There is no cost for registering or attending.
If you are interested in presenting at the meeting, please complete the “Speaker Abstract” form below by June 15, 2023.