“How Gio’s Diagnosis Affected Us” -Sylvia
“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but…
“The Paradox of an Aging Special Needs Child” – Beth
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Q&A With Dr. Ton DeGrauw— New Board Member
Q&A With Dr. Ton DeGrauw— New Board Member The Association for Creatine Deficiencies (ACD) welcomes Dr. Ton DeGrauw as part…
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…
“Obtain, Maintain, Sustain” – Regina
“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…
“Do We Have a Bad Neighbor?” – Janet
“Do We Have a Bad Neighbor?” – Janet Happy 2018 everyone!! We live in Canada and have been dealing with…
“Grieving the Missed Milestones” – Regina
“Grieving the Missed Milestones” – Regina We’ve all been there. Those moments when we witness our kids- or grandkids- struggling…
“Got to Get You Into My Life” – Amy
“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past…
“A Day in the Life” – Amy
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…