“Patient Champion” – Amy
“Patient Champion” – Amy A couple of weeks ago, we participated in something special – our Ben was a Patient…
“Traveling with Special Needs” – Randi
“Traveling with Special Needs” – Randi Everyday life with special needs children can be challenging. But one adjusts to the…
#SeasonofSmiles – Whitnie
#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings…
“What Are the Odds?” – Laura
“What Are the Odds?” – Laura GAMT is really, really, rare. We all know that! I am sure quite a…
“What About Me?” – Kelly
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our…
“Saying ‘I Love You'” – Beth
“Saying ‘I Love You’” – Beth It wasn’t until this school year, Benny’s 7th grade year, that we realized he…
“Why Us?!” – Laura
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures,…
“An update – 4 months on from the GAMT deficiency bombshell” – Kelly
“An update – 4 months on from the GAMT deficiency bombshell” – Kelly If someone told me at the beginning…
“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly
“Why Getting a Diagnosis Is So Much More Than a Label” – Kelly My daughter Holly (9) & son Isaac…