As we approach the holiday season, it is customary to reflect and give thanks for the blessings we have. It’s also the season of giving and a time of year when many open their hearts and wallets to share in their blessings and give back to many meaningful charities.
For me, I enjoy the opportunity to live on both sides of this giving equation. I am blessed. I have a loving husband and three beautiful children. Our life is wonderful. We play sports, go to school and work, and enjoy everything that we can as a family of five. We raise our children to be kind and to give.
Our middle child suffers from an incurable rare, genetic disorder called X-linked Creatine Transporter Deficiency (CTD). His is one of three cerebral creatine deficiency syndromes and the reason I also find myself devoted to a nonprofit that is on the receiving end of this season of giving- receiving donations from AmazonSmile.
I joined The Association for Creatine Deficiencies a few years back in an attempt to help my son by helping others. My son’s disorder doesn’t have a treatment, but I rationalize my dedication to the cause in hopes that, in some way, I might make a difference, if not for him directly, for the others who will inevitably follow.
This journey that started out as self-preservation has evolved into a passion and a purpose. Today, the ACD is a thriving organization driven by mothers, just like me, who can’t give up hope that one day they will make a difference for their children and so many more.
AmazonSmile has touched our organization, not only financially, but spiritually. AmazonSmile is a way for our community, family, and friends to share in our purpose and to contribute to our cause in an effortless, yet significant, way.
A simple purchase that equates to a larger financial impact goes a long way toward helping the ACD sustain our mission to providing education, research opportunities, and support for patients diagnosed with GAMT, AGAT, and CTD. Participants in the
AmazonSmile program can share in our pride and accomplishments knowing that they too, can make a difference with a simple click on smile.amazon.com/ch/46-2133007….and, knowing you are making a difference makes everyone smile. Thank you Amazon! #seasonofsmiles #acd #ctd