“Are You a 21st Century Pioneer?” – Nancy
“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or…
“CLOSED.” – Nancy
“CLOSED.” – Nancy “School closed,” says Sam for the 14th time today. I take a deep breath. If I don’t…
“Creating Capacity” – Janet
“Creating Capacity” – Janet When I was faced with the CTD diagnosis of my son, who is now 10, I…
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy I know I’m one of the lucky ones. We still…
“Discussions from the Society for Inherited Metabolic Disorders (SIMD) Meeting” – Tony
“Discussions from the Society for Inherited Metabolic Disorders (SIMD) Meeting” – Tony The Society for Inherited Metabolic Disorders (SIMD) holds…
“Making Friends” – Nancy
“Making Friends” – Nancy When your child is different, there are a lot of worries. We worry about their health;…
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy
“WHO’S GOING TO PROTECT HIM WHEN I’M GONE?” – Nancy Over-protective. Controlling. Helicopter Mom. Whatever you call it, that’s who…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
“What About Me?” – Kelly
“What About Me?” – Kelly I’ve made no secret that our family life is somewhat different from the norm. Our…
“The More Things Change…” – Nathan
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored…