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Special Needs

A woman touching noses with a goat with a red barn in the background.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Are You a 21st Century Pioneer?” – Nancy

Byacd_master September 2, 2020September 30, 2025

“Are You a 21st Century Pioneer?” – Nancy Pioneer. Verb. A person who is among the first to develop or…

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Calendar pages with Closed and ?? written across them
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“CLOSED.” – Nancy

Byacd_master June 15, 2020September 30, 2025

“CLOSED.” – Nancy “School closed,” says Sam for the 14th time today. I take a deep breath. If I don’t…

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Boy smiling and sitting by a road.
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Progress” – Lacy

Byacd_master June 2, 2020September 30, 2025

“Progress” – Lacy My son recently said my name for the first time. I don’t mean he called me Mommy….

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The healthcare symbol with a cannabis leaf
CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Our Journey Into Medical Marijuana for Epilepsy” – Nancy

Byacd_master March 6, 2020September 30, 2025

“Our Journey Into Medical Marijuana for Epilepsy” – Nancy The following is our journey into using Medical Marijuana (MMJ) with…

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A mother taking a selfie with her two children at an amusement park.
CCDS Family Stories

“Jacob” – Lacy

Byacd_master August 21, 2019October 8, 2025

“Jacob” – Lacy A phrase I hear quite often is, “I don’t know how you do it.” I don’t always…

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Boy pointing to a word on the white board in school.
CCDS Family Stories

“Obtain, Maintain, Sustain” – Regina

Byacd_master February 14, 2019October 8, 2025

“Obtain, Maintain, Sustain” – Regina Immediately following Caiden’s birth, we knew he was facing many struggles. We had a lot…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Because” – Amy

Byacd_master December 29, 2017October 27, 2022

“Because” – Amy At the end of the year, I like to reflect back so I can look forward and…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Getting Better” – Amy

Byacd_master July 6, 2017October 27, 2022

“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…

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Benny hugging Beth
CCDS Family Stories | GAMT Deficiency

“Saying ‘I Love You'” – Beth

Byacd_master May 4, 2017October 15, 2025

“Saying ‘I Love You’” – Beth It wasn’t until this school year, Benny’s 7th grade year, that we realized he…

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Young Levi on a scoot along toy
CCDS Family Stories | GAMT Deficiency

“1% Chance” – Laura

Byacd_master February 23, 2017October 15, 2025

“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…

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