
Allison’s Story
Allison loves her dog, Zeus, cheering on her sister’s soccer team, along with the KU Jayhawks and KC Royals and KC Chiefs! Allison is amazing with puzzles. She enjoys movies and music and loves church! Ally has a contagious giggle and warm personality. She never forgets a friend and loves people.
As she’s aging, her physical struggles are growing. Her mobility is getting more challenging. She does weekly horse therapy and physical therapy to help.
There are many unknowns with Allison’s Creatine Transporter Deficiency diagnosis. We are desperate to help her and the others struggling with this awful disease. Our dream is for Allison to be independent and happy and not regress in her abilities. We are encouraged by the number of research teams around the world trying to find a treatment and cure and they need financial support.
Any donation is greatly appreciated and likely will come with a big Al hug when we see you. Thanks in advance for being one of our Allison’s Holiday Heroes!


