“Our Experience of CTD” – Kayla
“Our Experience of CTD” – Kayla We’ve shared that Creatine Transporter Deficiency (CTD) can cause seizures, speech, intellectual, and motor…
“Awareness” – Lacy
“Awareness” – Lacy I find myself thinking a lot about awareness. It has been a buzzword in our lives for…
“The Power of Science and Connections – Thoughts on the 2022 Symposium” – Carlie
The Power of Science and Connections – Thoughts on the 2022 Symposium When I volunteered for the PaReNts project back…
“Walk for Strength 2022” – Kayla
Walk for Strength 2022 2022 Walk for Strength Guidance from a successful team captain- how to set up a team…
Creatine Decoded: ACD-Funded CTD Drug Repurposing Fellowships Make Progress in Year One
Creatine Decoded: ACD-Funded CTD Drug Repurposing Fellowships Make Progress in Year One Patient Samples from Coriell Biobank in Studies Seeking…
“A Diagnosis is a Chance at Hope” – Carlie
“A Diagnosis is a Chance at Hope” – Carlie By way of background, I am new to the CCDS community….
“Our Life with Epilepsy” – Nathan
“Our Life with Epilepsy” – Nathan Hello again, CCDS family, sorry it has been a while since I have contributed…
“Cerebral Creatine Deficiency Syndromes: The Road from Diagnosis to Therapies” – Erin
“Cerebral Creatine Deficiency Syndromes: The Road from Diagnosis to Therapies” – Erin I think most parents of children with Creatine…
“Bye, mom” – Nancy
“Bye, mom” – Nancy “Bye mom!” These were words I had longed to hear for nearly two years. Our youngest…
Creatine Decoded: The power of patient registries and patient-led research initiatives – How CCDS Families and Caregivers Can Drive Research
Creatine Decoded: The power of patient registries and patient-led research initiatives How CCDS Families and Caregivers Can Drive ResearchCreatine Decoded:…