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Author: acd_master

Levi reading a get well soon card
CCDS Family Stories | GAMT Deficiency

“New Year, New Boy?!” – Laura

Byacd_master February 2, 2018October 15, 2025

“New Year, New Boy?!” – Laura Hey everyone! I hope the new year is off to a great start! Levi…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Our Diagnosis Journey” – Shelly

Byacd_master January 25, 2018October 27, 2022

“Our Diagnosis Journey” – Shelly Some background to our story; I work in a well-baby nursery and Neonatal intensive care…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Expectations” – Nathan

Byacd_master January 21, 2018October 27, 2022

“Expectations” – Nathan Good day friends!  As I am traveling a bit with work right now, I have begun to…

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Beth with Jerry and Benny at birth
CCDS Family Stories | GAMT Deficiency

“Picturing the Future” – Beth

Byacd_master January 15, 2018October 15, 2025

“Picturing the Future” – Beth During the winter break, we undertook the daunting task of organizing digital photos from the…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Back to Blogging” – Janet

Byacd_master January 3, 2018October 27, 2022

“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Because” – Amy

Byacd_master December 29, 2017October 27, 2022

“Because” – Amy At the end of the year, I like to reflect back so I can look forward and…

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CCDS Family Stories | GAMT Deficiency

“The Magic of Christmas” – Laura

Byacd_master December 14, 2017October 27, 2022

“The Magic of Christmas” – Laura There was a time I wondered if we would ever experience “normal” holidays with…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Got to Get You Into My Life” – Amy

Byacd_master December 1, 2017October 27, 2022

“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

#SeasonofSmiles – Whitnie

Byacd_master November 20, 2017October 27, 2022

#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings…

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Couple at an Ironman
CCDS Family Stories | GAMT Deficiency

“#MyGivingStory” – Jerry

Byacd_master November 18, 2017October 15, 2025

“#MyGivingStory” – Jerry This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories…

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