“Drug Development- A Parent Perspective” – Erin
“Drug Development- A Parent Perspective” – Erin When the news came out about Lumos stopping the development of the drug…
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“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy
“WE’RE IN THIS TOGETHER, Like It or Not” – Nancy I know I’m one of the lucky ones. We still…
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“Super Bowl Sunday 2017—Diagnosis Day” – Erin
“Super Bowl Sunday 2017—Diagnosis Day” – Erin Super Bowl Sunday marks two years since we officially received Cadman’s diagnosis. It…
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“The Life of Alfred” – Nathan
“The Life of Alfred” – Nathan Every kid dreams of growing up to be a superhero. I can remember running…
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“Christmastime” – Lacy
“Christmastime” – Lacy I love this time of year! I love snuggling with my kids beside the soft glow of…
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“#MyGivingStory” – Chuck
“#MyGivingStory” – Chuck This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories…
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“Patient Champion” – Amy
“Patient Champion” – Amy A couple of weeks ago, we participated in something special – our Ben was a Patient…
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“Family Vacation” – Shelly
“Family Vacation” – Shelly We just had our first big family vacation. Overall it really was great, we had good…
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“Life With CTD” – Chelsi
“Life With CTD” – Chelsi Hello, my name is Chelsi and I have CTD. 23 years have come and gone…
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“The Feeding Tube Post” – Nathan
“The Feeding Tube Post” – Nathan Good day friends! For this blog, I thought I would write about something I…
