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Creatine Deficiency

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Run” – Nathan

Byacd_master July 21, 2016October 26, 2022

“Run” – Nathan Greetings again friends! While I had a post all written about expectations for this week, I just…

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CCDS Family Stories | GAMT Deficiency

“The Seizure Battle” – Heidi

Byacd_master July 12, 2016October 26, 2022

“The Seizure Battle” – Heidi When Samantha was five, she began having absence seizures. The quick, least scary type of…

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CCDS Family Stories | GAMT Deficiency

“The One in the Middle” – Beth

Byacd_master June 28, 2016October 26, 2022

“The One in the Middle” – Beth With the GAMT diagnosis of two of our children, our unaffected middle child…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Raising Reid” – Whitnie

Byacd_master June 21, 2016October 26, 2022

“Raising Reid” – Whitnie They say it takes a village to raise a child. I believe that to be true….

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“This Too Shall Pass” – Nathan

Byacd_master June 7, 2016October 26, 2022

“This Too Shall Pass” – Nathan Hello again friends, thanks for taking the time to once again visit with our…

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CCDS Family Stories | GAMT Deficiency

“Mother of a Miracle” -Sarah

Byacd_master June 2, 2016October 26, 2022

I’m Sarah and my daughter Ella is now 6 and a half. She was diagnosed with GAMT at just over…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Sweet William” – Jessica

Byacd_master May 24, 2016October 26, 2022

“Sweet William” – Jessica Hi, my name is Jessica and my son William, who just turned 5, has Creatine Transporter…

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CCDS Family Stories | GAMT Deficiency

“Out of the Dark” – Beth

Byacd_master May 17, 2016October 26, 2022

“Out of the Dark” – Beth When it comes to high points in my life, I have many—my wedding day,…

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Association for Creatine Deficiencies

RUSP Presentation – Heidi

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Heidi Hi. My name is Heidi Wallis. I am the mother of four children- two with GAMT…

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CCDS Family Stories | GAMT Deficiency

RUSP Presentation – Laura

Byacd_master May 8, 2016October 26, 2022

RUSP Presentation – Laura My name is Laura Martin and I’m here with the Association for Creatine Deficiencies to tell…

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