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Creatine Transporter Deficiency

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Feeding Tube Post” – Nathan

Byacd_master August 20, 2018October 27, 2022

“The Feeding Tube Post” – Nathan Good day friends! For this blog, I thought I would write about something I…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Let It Be” – Amy

Byacd_master June 21, 2018October 27, 2022

“Let It Be” – Amy As a mom of a child with a rare condition, particularly of my Ben who…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Realignment” – Nathan

Byacd_master May 30, 2018October 27, 2022

“Realignment” – Nathan Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather. …

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Perseveration of Speech” – Janet

Byacd_master May 23, 2018October 27, 2022

“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in…

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Creatine Transporter Deficiency (CTD)

“The Advocate, The Meanie, The Mom…” – Regina

Byacd_master May 14, 2018October 27, 2022

“The Advocate, The Meanie, The Mom…” – Regina My oldest child, Chelsi, my first born, my 18th birthday present, and…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Speed Doesn’t Matter, Forward Is Forward” – Shelly

Byacd_master April 12, 2018October 27, 2022

“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“With a Little Help from My Friends” – Amy

Byacd_master March 29, 2018October 27, 2022

“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis,…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“A Typical Day for Our Family” – Nathan

Byacd_master March 25, 2018December 5, 2022

Our typical day and what our boys experience with CTD.

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Do We Have a Bad Neighbor?” – Janet

Byacd_master February 27, 2018October 27, 2022

“Do We Have a Bad Neighbor?” – Janet Happy 2018 everyone!! We live in Canada and have been dealing with…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Back to Blogging” – Janet

Byacd_master January 3, 2018October 27, 2022

“Back to Blogging” – Janet I love reading special needs blogs. They have lifted me up and carried me through…

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