“Because” – Amy
“Because” – Amy At the end of the year, I like to reflect back so I can look forward and…
“Got to Get You Into My Life” – Amy
“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past…
#SeasonofSmiles – Whitnie
#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings…
“A Day in the Life” – Amy
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…
“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
“The More Things Change…” – Nathan
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored…
“Franco’s Journey” – Lisa
“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It…
“Why Us?!” – Laura
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures,…
“1% Chance” – Laura
“1% Chance” – Laura GAMT is so rare, just getting diagnosed seems to be quite an ordeal. I like hearing…