“How Gio’s Diagnosis Affected Us” –Sylvia In 2019 I was planning to have a hysterectomy due to my endometriosis, but plans changed when I found out I was pregnant! This […]
“CCDS Seizures” – Denise Morita, MD Our son Dylan, who is 5 and was diagnosed with CTD earlier this year, was originally diagnosed with epilepsy at the age of 2. […]
“A Boy and His Dog” – Laura Trevor and I both grew up with dogs as family pets. We knew we would one day get a family dog, too. We […]
“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It has been a long journey to say the least and […]
“An update – 4 months on from the GAMT deficiency bombshell” – Kelly If someone told me at the beginning of last November, just how much our lives were going […]