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CCDS Family Stories | GAMT Deficiency

“Grateful” – Mikelle

Byacd_master November 25, 2016October 15, 2025

“Grateful” – Mikelle I’m grateful for so many little miracles in my life. Every time I watch Max play soccer…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Thanksgiving” – Nathan

Byacd_master November 23, 2016October 26, 2022

“Thanksgiving” – Nathan Thanksgiving is upon us friends, and let me personally wish each and every reader a Happy Thanksgiving!…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Less Than One Percent” – Kelly

Byacd_master November 21, 2016October 26, 2022

“Less Than One Percent” – Kelly I would have never guessed in a million years that I would have a…

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Three kids in matching shirts.
CCDS Family Stories | GAMT Deficiency

“Bravery” – Beth

Byacd_master November 11, 2016October 15, 2025

“Bravery” – Beth I woke up this morning with anxiety. We needed to change my daughter’s g-tube today. Through the course…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Time” – Janet

Byacd_master October 22, 2016October 26, 2022

“Time” – Janet Sometimes, as a parent you get sucked into the daily grind of routines and chaos. It’s life…

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Association for Creatine Deficiencies

“Creatine Transporter Deficiency” – Judith Miller, PhD

Byacd_master October 19, 2016December 5, 2022

Creatine Transporter Deficiency – Judith Miller, PhD By Judith Miller, PhD, and Rebecca Thomas, MA  –  The Children’s Hospital of…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Amazing Kids” – Nathan

Byacd_master October 16, 2016October 26, 2022

“Amazing Kids” – Nathan Greetings again friends! I hope this post finds everyone well as we move headlong into the…

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CCDS Family Stories | GAMT Deficiency

“How this GAMT Dad Deals” – Jerry

Byacd_master September 30, 2016October 26, 2022

“How this GAMT Dad Deals” – Jerry I recently came across an organization that, when I took a look at…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“William’s Big School Journey” – Jess

Byacd_master September 20, 2016October 26, 2022

“William’s Big School Journey” – Jess My son William (5), has CTD, and started big school for the first time…

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CCDS Family Stories | GAMT Deficiency

“Meet Max” – Mikelle

Byacd_master September 13, 2016October 26, 2022

“Meet Max” – Mikelle Meet Max. Six years ago (almost seven), my life changed when he was born. He was…

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