“Less Than One Percent” – Kelly
“Less Than One Percent” – Kelly I would have never guessed in a million years that I would have a…
“Bravery” – Beth
“Bravery” – Beth I woke up this morning with anxiety. We needed to change my daughter’s g-tube today. Through the course…
“Time” – Janet
“Time” – Janet Sometimes, as a parent you get sucked into the daily grind of routines and chaos. It’s life…
“Creatine Transporter Deficiency” – Judith Miller, PhD
Creatine Transporter Deficiency – Judith Miller, PhD By Judith Miller, PhD, and Rebecca Thomas, MA – The Children’s Hospital of…
“Amazing Kids” – Nathan
“Amazing Kids” – Nathan Greetings again friends! I hope this post finds everyone well as we move headlong into the…
“How this GAMT Dad Deals” – Jerry
“How this GAMT Dad Deals” – Jerry I recently came across an organization that, when I took a look at…
“William’s Big School Journey” – Jess
“William’s Big School Journey” – Jess My son William (5), has CTD, and started big school for the first time…
“Meet Max” – Mikelle
“Meet Max” – Mikelle Meet Max. Six years ago (almost seven), my life changed when he was born. He was…
“Those Who ‘Get It'” – Janet
“Those Who ‘Get It’” – Janet My 7 year old son has CTD and Autism. He was diagnosed with CTD…
“Blessed to Have Her Here” – Sarah
“Blessed to Have Her Here” – Sarah So this is my second post about Ella, who is 7 in a…