“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in on our family, we have 4 kiddos, 1 of them […]
“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our CTD diagnosis at 9 months old. If you didn’t… well, […]
“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis, he was diagnosed with infantile scoliosis due to his hypotonia […]
#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings we have. It’s also the season of giving and a […]
“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four, almost five, year old boy with Creatine Transporter Deficiency (CTD) […]
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before […]
“A Mother’s Intuition and How One Family Never Gave Up” – Whitnie Parents have a sixth sense about their children. Call it a hunch, a gut feeling or a Mother’s/Father’s […]
“The Parker Family” – Melissa “There have been angels in my life….” This was written to me on a thank you note by the wife of a friend who passed […]
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