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x-linked creatine deficiency

CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Perseveration of Speech” – Janet

Byacd_master May 23, 2018October 27, 2022

“Perseveration of Speech” – Janet Hi everyone out there! I hope everyone is doing great. Just to fill you in…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“Speed Doesn’t Matter, Forward Is Forward” – Shelly

Byacd_master April 12, 2018October 27, 2022

“Speed Doesn’t Matter, Forward Is Forward” – Shelly If you read my previous post then you know we received our…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“With a Little Help from My Friends” – Amy

Byacd_master March 29, 2018October 27, 2022

“With a Little Help from My Friends” – Amy Before we found out about Ben’s Creatine Transporter Deficiency (CTD) diagnosis,…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

#SeasonofSmiles – Whitnie

Byacd_master November 20, 2017October 27, 2022

#SeasonofSmiles – Whitnie As we approach the holiday season, it is customary to reflect and give thanks for the blessings…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“A Day in the Life” – Amy

Byacd_master August 26, 2017October 27, 2022

“A Day in the Life” – Amy I thought it would be beneficial to share a profile of our four,…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Long and Winding Road” – Amy

Byacd_master May 24, 2017October 27, 2022

“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“A Mother’s Intuition” -Whitnie

Byacd_master April 4, 2016October 26, 2022

“A Mother’s Intuition and How One Family Never Gave Up” – Whitnie Parents have a sixth sense about their children….

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CCDS Family Stories | Creatine Transporter Deficiency (CTD)

“The Parker Family” – Melissa

Byacd_master April 1, 2016October 26, 2022

“The Parker Family” – Melissa “There have been angels in my life….” This was written to me on a thank…

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