Join the ACD Family Network

The ACD values your privacy and will not share your information outside the ACD. By submitting this form, you agree to voluntarily provide the information below to the ACD and join as a member of the ACD Family Network. You may request that you and your personal information be removed by emailing the ACD.

Parent/Guardian Name*
Email Address*
Would you like us to email you our quarterly newsletter?*
- Yes
- No
CCDS Diagnosis*
- GAMT Deficiency
- AGAT Deficiency
- CTD (also known as SLC6A8 Deficiency, CRTR, and X-linked Creatine Transporter Deficiency)
- Diagnosis Incomplete; in progress
Name and birth year of CCDS patient (for example "Emma 2003")
Primary Language*
Would you like to be connected to another family in your region?*
- Yes
- No
We will only share your email address and diagnosis with a supportive family if you choose "yes".
Address
Any Questions for Us?
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Join the ACD Family Network

Join the ACD Family Network

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