Information for Your Patients

Help Your CCDS Families

Families diagnosed with a Cerebral Creatine Deficiency Syndrome need support from other CCDS families to understand what to expect for their family’s future.

If you have a patient with a CCDS diagnosis, we encourage you to share this information with your patients to help connect them with others living with CCDS.

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New CCDS Patient Information

Share these Family Support Links:

Understanding CCDS Brochure

Patient Registry

Family Stories

Support Group

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