Creatine Community Blog

24May 2017

Ben smiling, wearing a preppy sweater

Not having a diagnosis for your child when you know something is wrong is like driving your car somewhere you’ve never been before with no directions. All you know is the general direction, and you keep moving that way, but you’re really not sure you’ll make your destination because you don’t know how to get there. Continue reading

09May 2017

boys hunting for easter eggs on lawn

Greetings friends! Well, it is that time again as I am once more honored to be a part of your daily intake of reading. Although I often share the awesome craziness of our lives and how our three boys with CTD have gone through some tough spells, everything is on the right track now and this post will be a bit different. Continue reading

04May 2017

Benny hugging Beth

It wasn’t until this school year, Benny’s 7th grade year, that we realized he didn’t have the phrase “I love you” on his communication device. Benny is totally nonverbal and relies on assistive technology to communicate. He does have one approximation of “yeah” in his verbal catalog, but other than that, he uses his voice primarily to indicate feelings only— he’ll screech loudly when he’s mad his TV time is over. Continue reading

20Apr 2017

Franco with his dog, Ash

This is our story and our journey that led to our son’s diagnosis of CTD. It has been a long journey to say the least and now this new diagnosis takes us on a new path. Continue reading

04Apr 2017

Levi holding a Valentines balloon

Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures, hospital stays, to the complications we encounter every day.   Continue reading