Creatine Community Blog

29Jun 2018

Sonnet walking smiling

Since Sonnet wasn’t diagnosed with GAMT until she was seven-years-old, she is severely affected developmentally in every way. We found that with treatment and therapies she gained new skills quickly. Her therapists are a VERY important part of our team. Continue reading

21Jun 2018

As a mom of a child with a rare condition, particularly of my Ben who has Creatine Transporter Deficiency (CTD), it’s so easy to let your mind wander into topics that make you really sad or scared. That’s been happening to me recently. Continue reading

15Jun 2018

I feel like all us parents of special need kiddos have that one person who is our main go-to.  Who we all wonder why the heck they choose to be involved in our lives but are so extremely happy they stay.  This post is going to be a little different because I’m pretty much just going to shout out to our friend.  But I feel like you guys will relate because I know you guys have this Friend in your life too… Continue reading

11Jun 2018

Summer is the most coveted time of the year around our house… AND IT’S HERE!!! Both boys have birthdays in the summer, the weather is perfect for swimming and being outside all day, shaved ice and late nights playing – it is just great! Continue reading

30May 2018

Good day again readers! I hope everyone has been enjoying the warmer days and (hopefully) sunny weather.  If you caught my last post, I discussed the expectations that my wife and I have for our boys with CTD and how those expectations or goals have changed over time.  As I finished writing that post, it kept coming back to me that the boys aren’t the only ones who we had expectations for that required some level of realignment. Continue reading