CCDS Expert Panel

CCDS Expert Panel: Community Webinar Series

Next Meeting: November 1, 2022 3:00pm-4:30pm Eastern

Goal:

Connect clinicians and increase understanding of CCDS.

Agenda:

This quarterly webinar series will present CTD, GAMT, and AGAT case studies developed through our PCORI funded PaReNts Project, with a focus on caregiver concerns.

Panel discussions will be led by Dr. Sylvia Stockler and world-renowned experts from the field of CCDS. Additional guest panel members will attend as relevant to the cases being discussed.

Clinicians and parents in attendance will hear case presentations, post questions in the chat, and observe the panel discussion.

*Signing up for this event means you will receive an invitation to all future CCDS Expert Panel Community Webinars. You may opt out at any time by emailing faith@creatineinfo.org.

**The aim will be to discuss potential approaches to improving care of the CCDS patient. Discussions are not meant to be used as medical advice. Always speak with your clinician prior to making changes in care.