CCDS in the News


March 28th, 2017

PRESS RELEASE- Association for Creatine Deficiencies Welcomes New Board Member

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June 21st, 2016

Lumos Pharma appoints Carol A. Dutch as Senior Director, Patient Engagement

May 12th, 2016

Family, Doctors Pushing for GAMT Deficiency Testing in Newborns

April 6th, 2016

Lumos Pharma Raises $34 Million in Series B Financing

December 9th, 2015

FDA Awards NORD $250,000 Grant to Support the Development of 20 Natural History Studies for Rare Disease Research

October 29th, 2015

Cyclocreatine Normalizes Cognition in Creatine Deficient Mouse

September 29th, 2015

NORD Issues Statement Applauding the Approval of Ensuring Access to Clinical Trials Act

May 5th, 2015

Startup Austin biotech firm nabs $19.5M for drug development

February 27th, 2015

National Rare Disease Awareness Week: My Son’s Story

December 10th, 2014

Mother’s Intuition Leads to Rare Diagnosis for Son

June 7th, 2014

Creatine Deficiency Among Disorders Underdiagnosed, Researchers Say

February 5th, 2014

Creatine Transporter Deficiency Treatment By Lumos Pharma To Enter Testing, Thanks To $14 Million Series A Financing

July 2nd, 2012

Cyclocreatine treatment improves cognition in mice with creatine transporter deficiency

July 2nd, 2012

Researchers Report Success in Treating Autism Spectrum Disorder

February 9th, 2010

Duke lab tests for rare genetic disorders

January 18th, 2010

A Success Story: Family Hopes to Raise Awareness about Creatine Deficiency Disorder