About Allison
Allison loves her dog, Zeus, cheering on her sister’s soccer team, along with the KU Jayhawks and KC Royals and KC Chiefs! Allison is amazing with puzzles. She enjoys movies and music and loves church! Ally has a contagious giggle and warm personality. She never forgets a friend and doesn’t know a stranger.
As she’s aging, her physical struggles are growing. Her mobility is getting more challenging. She does weekly horse therapy and physical therapy to help.
There are many unknowns with Allison’s Creatine Transporter Deficiency diagnosis. We are desperate to help her and the others struggling with this awful disease. We are encouraged by the number of research teams around the world trying to find a treatment and cure and they need financial support.
Any donation is greatly appreciated and likely will come with a big Al hug when we see you. Thanks in advance for being one of our Allison’s Holiday Heroes!
Holiday Heroes 2024
Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.
ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!
Children with Creatine Deficiencies are severely impacted in their daily lives by:
- Seizures
- Lack of Speech
- Intellectual Disability
- Autism
- Behavioral Issues
- And more…
Your donation will fund research to change this!
ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:
- The next phases of promising research projects (2 large projects began in 2024)
- New fellowship grants to early career researchers (5 were awarded in 2024)
- Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
- New projects with a focus on therapeutic development (proposals under review)
Thank you for being a Holiday Hero!
We can’t do this without you. Please donate today to fund CCDS research.
Questions? Contact ACD.