Adam

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Walk for Strength 2022

Adam was diagnosed with the currently untreatable genetic disorder called Creatine transporter deficiency (CTD) just after his 3rd birthday. Till today , Adam has no verbal language skills and faces many additional long term challenges with the additional diagnosis that comes along with CTD including intellectual disability, autism, epilepsy and seizures. We love and adore Adam and hope for a better future for him. Special thanks to the research efforts being led by ACD. Initial fundraising efforts have been very successful, and donations continue to be needed moving forward for continuing progress on gene therapy and drug development research. Your support means so much to our family and all the ones affected by Cerebral Creatine Deficiency Syndrome!

Join us on August 20th for the Association for Creatine Deficiencies’ 7th annual Walk for Strength and help us raise awareness for Cerebral Creatine Deficiency Syndromes! We will be meeting at Belmont Park at 10:30 AM.