Advocacy

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  2. Advocacy

Become a CCDS Advocate

  1. Advocate for Your State

    Advocate for Your State

    States with Rare Disease Advisory Councils (RDAC)

    RDAC Resources & Toolkits from the National Organization for Rare Diseases (NORD)

  2. International Advocacy

    International Advocacy

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  3. Newborn Screening

    Newborn Screening

    Information on Newborn Screening

    Map of GAMT Newborn Screening

  4. Shareable Resources

    Shareable Resources

    Creatine Deficiency Educational Video

    GAMT Deficiency Story: The Power of Newborn Screening

    To find more resources, visit our Patient Resources page.