Meet Asher
Asher is turning 5 this December and has been thriving in his transitional kindergarten class. He’s full of joy and curiosity, with a great sense of humor—he thinks farting is the funniest thing in the world!
Recently, Asher has reached some exciting milestones: he’s learned to jump off a curb (and now wants to jump off everything), mastered turning a round doorknob, and is beginning the journey of learning to ride a bicycle. While he’s still significantly impacted in his speech, he’s making steady progress every day.
Asher is also a fantastic eater—he’s not picky at all! He especially loves meat, fish, and cheese, making mealtime one of his favorite parts of the day.
Thank you for being Asher’s Holiday Hero and for supporting research to develop a treatment so he can reach more milestones. Your generosity makes all the difference!
Holiday Heroes 2024
Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.
ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!
Children with Creatine Deficiencies are severely impacted in their daily lives by:
- Seizures
- Lack of Speech
- Intellectual Disability
- Autism
- Behavioral Issues
- And more…
Your donation will fund research to change this!
ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:
- The next phases of promising research projects (2 large projects began in 2024)
- New fellowship grants to early career researchers (5 were awarded in 2024)
- Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
- New projects with a focus on therapeutic development (proposals under review)
Thank you for being a Holiday Hero!
We can’t do this without you. Please donate today to fund CCDS research.
Questions? Contact ACD.