Healthy Bluffdale Coalition

$5 Registration!

Bid for a cause!

Help us find cures for CCDS!

Healthy Bluffdale Coalition & ACD Join Together for the 9th Annual Walk

When: June 15, 2024 • Check-in 9:30am, walk starts 10am, followed by fun & food

Where: Bluffdale City Main Park

Why: Enjoy a fun event while supporting two great causes: Healthy Bluffdale Coalition and Association for Creatine Deficiencies!

What:

• Interactive 1-mile walk
• kids’ scavenger hunt and prizes for completion
• dunk booth
• face painting
• carnival-type games
• food trucks, and more!

Questions? Contact ACD.

About Healthy Bluffdale Coalition

• Healthy Bluffdale Coalition is making steps to improve the health of those who live, work and play in Bluffdale!
• They empower people to take charge of their health and prevent illness.

About Association for Creatine Deficiencies

• Charity run by a local Bluffdale family with 2 children with GAMT (creatine deficiency type 2)
• If diagnosed at birth, GAMT patients avoid disability and seizures
• Help us ensure every baby has the chance for a full life and is diagnosed at birth!
• If you’d like a walk shirt, register by May 15 at creatineinfo.org/bluffdale.

Meet Sam & Louis

Sam and Louis are siblings in Utah that share a genetic disorder- GAMT. Sam was diagnosed at age 5 after years of therapies and misdiagnoses. Because of her late diagnosis, Sam is intellectually disabled and has epilepsy. Louis was diagnosed at birth, thanks to Sam! Louis loves hockey, baseball, video games, and is in a “typical” classroom. ACD is a 501c3 nonprofit founded to help other kiddos get diagnosed with GAMT early, educate clinicians and families on creatine deficiencies, and drive research to find better treatments for GAMT and AGAT and a treatment for CTD (currently not treatable)!