“Getting Better” – Amy
“Getting Better” – Amy Ben’s recent Creatine Transporter Deficiency (CTD) diagnosis has hit me hard emotionally, so I thought that…
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“The Long and Winding Road” – Amy
“The Long and Winding Road” – Amy Not having a diagnosis for your child when you know something is wrong…
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“The More Things Change…” – Nathan
“The More Things Change…” – Nathan Greetings friends! Well, it is that time again as I am once more honored…
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“Franco’s Journey” – Lisa
“Franco’s Journey” – Lisa This is our story and our journey that led to our son’s diagnosis of CTD. It…
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“On Valentine’s Day” – Nathan
“On Valentine’s Day” – Nathan Well, it’s here friends, February 14th , and according to the automatic reminder on my…
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“My little guy” – Jane
“My little guy” – Jane My little guy is now 8 years old and was diagnosed with Creatine Transporter Deficiency…
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“Five Years… Then and Now” – Janet
“Five Years… Then and Now” – Janet When my son Spiro was first diagnosed with CTD, I thought it would…
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“The Day That Changed My Life” – Whitnie
“The Day That Changed My Life” – Whitnie There are certain days that have a significance in all of our…
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“Our Gifts” – Nathan
“Our Gifts” – Nathan Happy New Year friends! Have you made your resolutions yet? To be honest I don’t do…
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“I’d Go Anywhere for Him” – Whitnie
“I’d Go Anywhere for Him” – Whitnie Every time I pack my bags I get this funny feeling. It’s true…