Every week, parents of newly diagnosed children join our community because they need resources, support, and hope. We invite you to help by recording a short video message.
Share your message—parent to parent
Do you remember the early days of your child’s CCDS diagnosis? What information and support did you need the most at that time?
Record a brief message for new CCDS families using your phone! Send us a short video (60 seconds or less, filmed vertically) with your words of wisdom and support. Pick any topic that you find most valuable.
Below are some ideas but feel free to speak from your experience and heart.
What you wish you knew when your child was first diagnosed
Advice for how you conquered your biggest challenges such as school placement and successes, potty training, therapies, giving supplements, or other important milestones
Hope and Encouragement
Submit your message to new CCDS Parents
Submission Deadline: January 26, 2024
We are looking for video clips that are 60 seconds or less, filmed vertically (like you are on FaceTime), sharing your perspective. You can film yourself talking to the camera, or film your child doing something and *speak through the video.
*Using an app on your phone like “Voice Memos” or similar, you can also share an audio file that you’d like to accompany a background video (for example, you may want to show your child at speech therapy with an audio clip of you sharing a message like “going to speech therapy twice per week made all the difference for Steven.”)
**To protect your privacy, please avoid sharing last/family name, city/town, and birthdates.