Chelsi & Caiden

As you know, Chelsi and Caiden have a rare, currently untreatable, genetic condition called Creatine Transporter Deficiency. There are only about 350 cases in the world. It’s been 21 years since CTD was discovered and the needle is finally starting to move on research.

Last year, our parent group raised 94k for Gene Therapy research and drug development. While this may seem like a lot, much more is needed to fund these expensive projects. This year, we are aiming to raise $250,000 to drive cerebral creatine deficiency research in 2022. We know this is ambitious, but we are confident that we can achieve this goal with your help!

This holiday season, we invite you to give alongside us. Chelsi and Caiden need heroes! Every little bit counts and makes a difference.

Happy and healthy holidays!