It’s official! February 1st is “Cerebral Creatine Deficiency Syndrome Awareness Day.”
Help spread awareness of CCDS by celebrating this day in your community.
We kicked off our first celebration of CCDS day in 2017 and are already working on plans to make 2018 even better!
Some ideas for individuals in their hometown include:
CCDS are considered rare disorders and the ACD is proud to support Rare Disease Day.
Help us join with other rare disease groups in spreading Rare Disease and CCDS Awareness on February 28, 2018.
Rare Disease Day is a worldwide initiative. For more information on this international event, visit rarediseaseday.org.
For more information about Rare Disease Day in the US, click here.
Shop and support ACD to get your CCDS Awareness merchandise today!
ACD’s Rare Disease Day partnership page can be found here.
For ideas of how to participate in rare disease day and both support this initiative and raise awareness of Cerebral Creatine Deficiency Syndromes, Click Here.
Texas Children’s Hospital National featured this CCDS story for Rare Disease Awareness Week: “My Son’s Story”
The third annual Walk for Strength is coming soon! Look for the date and sign ups to be announced early 2018. This walk is meant to be participated in by all CCDS families in their local communities. Your group may be as small as 1 or as large as you can recruit! Email us for more ideas and flyers to distribute, etc. at firstname.lastname@example.org.