Danny

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Walk for Strength 2022

Join us on August 20, 2022 for a virtual Walk for Strength! Once again we will be walking to raise awareness for Cerebral Creatine Deficiency Syndrome (CCDS). As some of you already know, Danny has a rare disease called CCDS with the Creatine Transport Defect (CTD). CTD means that no matter what we try, his body will not absorb creatine which inhibits his muscle growth and brain development. We have been working with research teams to try to figure out a treatment/cure and just how the disease presents naturally. To learn more please visit https://creatineinfo.org to learn about the different types of CCDS and research development. If you can, please donate so that hopefully we can help families in the future navigate diagnosis and treatment options sooner!