Live Polling
Respond to polling questions in real time! Go to PollEv.com/CCDS and make your voice count!
Phone-in Live
Want to talk to us live during the discussion sessions?
Call 1-703-844-3231 when prompted.
*Due to time restrictions, we may not be able to get to all phone calls.
Submit a Written Comment
Submit a comment below on the topics we will be discussing during the EL-PFDD meeting. Comments should be submitted individually.
Submit a Written Comment
The comments collected may be shared during the Live meeting and may also be used in the final Voice of the Patient report (with identifying information removed).
- What symptoms of CCDS do you or your loved one exhibit?
- What symptoms have the most significant impact on you or your loved one’s life?
- How does CCDS impact you or your loved one on best and worst days? Describe your best days and your worst days.
- For those with AGAT and GAMT, what are your thoughts on current treatment modalities?
- For those with CTD, what are your thoughts in regards to possible future treatments?