Past Events from October 14, 2022 – February 28, 2023 – Page 3 – Association for Creatine Deficiencies

Virtual Town Hall with Ultragenyx: Updates on the Vigilan Study

Do you have questions about the recent changes announced by Ultragenyx to the Vigilan Natural History Study? ACD is hosting a virtual town hall event on Friday, Oct. 14, from 12 noon – 1:30pm PT with Ultragenyx representatives and Dr. Judi Miller, the Coordinating Principal Investigator for the Vigilan study, to answer your questions. You […]

Holiday Heroes 2022

Holiday Heroes 2022 is here! Learn more about this year's campaign goals and how you can participate here.

EL-PFDD Introductory Webinar

Join us on Dec 8, 2022 at 2:30 PM ET for an introductory webinar aimed at providing an overview of EL-PFDD meetings, including more about the format, purpose, and goals of the January 2023 CCDS EL-PFDD. Learn more and register here.

CCDS Sibshops

Calling all CCDS siblings! We're excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  UPCOMING SESSIONS Saturday, January 14th Saturday, February 25th Saturday, April 8th Each date will have three times: 2:00-2:45 ET youngest group […]

CCDS Day 2023

Learn how you can participate in the #CCDSDay2023 campaign here.

CCDS Sibshops

Calling all CCDS siblings! We're excited to announce that ACD is partnering with Sibshops to provide a space for siblings to connect and receive peer support in a fun environment. Sign up today! https://creatineinfo.org/sibshops/  UPCOMING SESSIONS Saturday, February 25th Saturday, April 8th Each date will have three times: 12:00-12:45 ET youngest group (ages 5-7) 1:00-2:00 […]