Join the ACD Family Network

Parent/Guardian Name*

Email Address*

CCDS Diagnosis*

GAMT Deficiency
AGAT Deficiency
CTD (also known as SLC6A8 Deficiency, CRTR, and X-linked Creatine Transporter Deficiency)
Diagnosis Incomplete; in progress

Name and birth year of CCDS patient (for example "Emma 2003")

Primary creatine deficiency clinician (often a geneticist or neurologist)

Clinician's Hospital

Primary Language*

Country*

Would you like to be connected to a support family in your region?*

May we share your name and email address with that support family?*

Would you like us to email you our quarterly newsletter?*

Would you like to join our WhatsApp Community?*

WhatsApp Phone Number

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