Join the ACD Family Network

The ACD values your privacy and will not share your information outside the ACD. By submitting this form, you agree to voluntarily provide the information below to the ACD and join as a member of the ACD Family Network. You may request that you and your personal information be removed by emailing the ACD.

Parent/Guardian Name*
Email Address*
Phone Number

If you provide a phone number, you may receive a text or WhatsApp message up to once per month regarding only the most important messages from ACD. You may opt out at any time.
Primary Language*
CCDS Diagnosis*
- GAMT Deficiency
- AGAT Deficiency
- CTD (also known as SLC6A8 Deficiency, CRTR, and X-linked Creatine Transporter Deficiency)
- Diagnosis Incomplete; in progress
Name and birth year of CCDS patient(s)
Would you like to be connected to another family in your region?*
- Yes
- No
We will share your email address and diagnosis with a supportive family if you choose "yes".
Address
If you provide a shipping address, we will send you a small welcome package.
Any Questions for Us?
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Join the ACD Family Network

Join the ACD Family Network

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