fNIRS Interest Survey

fNIRS Endpoint Investigation: A Potential Non-Invasive BioMarker

ACD is making progress to prepare our community for potential clinical trials.  Drs. Michela Fagiolini, Laura Baroncelli, and Irina Anselm will launch a study site in spring of 2024 at Boston Children’s Hospital and Harvard Medical School. ACD is supporting this study by providing equipment, thanks to a generous grant from the Ludwick Family Foundation, distribution of information to the CCDS community, and other caregiver supports. The study will be investigating ‘fNIRS’ technology and measuring correlations between fNIRS data and cognitive function in CCDS patients. The objective is to determine if fNIRS can function as a non-invasive biomarker for CCDS clinical trials.

Learn More: Watch the fNIRS Informational Webinar

Get Involved

If you are interested in participating in the fNIRS study, please contact edeline.jeanbaptiste@childres.harvard.edu.

fNIRS at the Symposium

There are still some spots open for fNIRS at the 2024 CCDS Scientific + Patient Symposium and, best of all, we have a partner that will help with 50% of the patient and one caregiver’s flight. We encourage you to contact the email above soon, before all the spots are filled.