Jacob

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Jacob is a 13-year-old boy who loves sports, particularly hockey and baseball. He was born with a rare, incurable genetic disease called Creatine Transporter Deficiency (CTD), which impairs his brain from properly developing or functioning.

He was diagnosed at the age of nine, after almost a decade of tests, procedures and misdiagnoses. Jacob is not the only one affected by this, and he certainly won't be the last. We need your help to fund more medical and research initiatives for creatine deficiencies to be better diagnosed and treated.

Walk for Strength 2022

Join us on August 20th at 9:00 AM for the Association for Creatine Deficiencies’ 7th annual Walk for Strength and help us raise awareness of Cerebral Creatine Deficiency Syndromes!

Gold Bar Park
10955 50 St NW
Edmonton, Alberta T6A 2E9
Canada

We will meet at the gazebo next to the parking lot just before 9am, and start walking at 9am sharp. The walk will be approximately 5km, and will go rain or shine, so dress appropriately! Bring family members, friends, and anyone who is willing to attend. We recommend dressing in orange so we can be recognized!

Thank you for your support!

Register for the Walk
Donate in Jacob's Honor
Learn About ACD's Research Strategy
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