As you know, our son has a rare, currently untreatable, genetic condition called Creatine Transporter Deficiency. There are only about 350 cases in the world—all children that will not lead a normal life. It’s been 21 years since CTD was discovered and the needle is finally starting to move on research.
Join us on August 20th for ACD's seventh annual Walk for Strength and help us raise awareness for Cerebral Creatine Deficiency Syndromes! Details TBD.