We have a lot of love and deep admiration for Leo, who bravely faces the challenges of creatine deficiency. It’s amazing to see how he overcomes obstacles and celebrates victories, inspiring everyone around him with his affection and generosity.

Léo is a transparent child, who manifests his wills and desires… He loves a party and likes funny things. He’s a strong, spontaneous, and happy child.

Leo is a true warrior and a star who shines in a special way. His story is a reminder that every moment of life is valuable and that with love and determination, it is possible to overcome any obstacle.

Holiday Heroes 2024

Holiday Heroes is ACD’s year-end fundraiser and all funds raised are dedicated to research.

ACD has been promised a donation of $125,000 when $200,000 has been raised. This is will be ACD’s largest ever single donation and will be monumental for next year’s CCDS research! Your help will go farther this year than ever before!

Children with Creatine Deficiencies are severely impacted in their daily lives by:

• Seizures
• Lack of Speech
• Intellectual Disability
• Autism
• Behavioral Issues
• And more…

Your donation will fund research to change this! 

ACD has some very promising research initiatives underway. Additional funding will expand these efforts and launch new projects, such as:

• The next phases of promising research projects (2 large projects began in 2024)
• New fellowship grants to early career researchers (5 were awarded in 2024)
• Creatine Deficiency Research Centers (multi-project CCDS research institutions; University of Utah was launched in 2023)
• New projects with a focus on therapeutic development (proposals under review)

Thank you for being a Holiday Hero!

We can’t do this without you. Please donate today to fund CCDS research.

Questions? Contact ACD.