Lucas

Walk for Strength

Lucas and a few hundred other kiddos in the world have been diagnosed a rare genetic disorder that effects their SLC6A8 gene. Experts believe that this condition is under diagnosed by 100x!  This week, Lucas’s dad Randy will be walking 68 miles to raise funds & awareness in a quest for a cure.  He and his wife Jennifer will be matching dollar for dollar every contribution. Thank you for your gift and commitment to helping change the course for Lucas and hundreds of others.

Have you ever heard of Cerebral Creatine Deficiency Syndrome? Neither had we until our son Lucas was diagnosed with the rare genetic brain disorder. After 15+ months of countless appointments, tests, scans and specialists he was diagnosed Creatine Transporter Deficiency (CTD). His brain is unable to receive the creatine necessary to intellectually develop like your everyday kiddo. Although his future is unknown, ACD is leading the charge to bring answers and solutions to Lucas and hundreds of others like him. The promise for a bright future is on the horizon.

Check out this USA Today article to learn more and bring awareness to families in search for answers and understanding.