Lucas

Walk for Strength 2022

Join us on August 20th for the Association for Creatine Deficiencies’ seventh annual Walk for Strength and help us raise awareness for Cerebral Creatine Deficiency Syndromes! More details to come.

Have you ever heard of Cerebral Creatine Deficiency Syndrome? Neither had we until our son Lucas was diagnosed with the rare genetic brain disorder. After 15+ months of countless appointments, tests, scans and specialists he was diagnosed Creatine Transporter Deficiency (CTD). His brain is unable to receive the creatine necessary to intellectually develop like your everyday kiddo. Although his future is unknown, ACD is leading the charge to bring answers and solutions to Lucas and hundreds of others like him. The promise for a bright future is on the horizon.

Check out this USA Today article to learn more and bring awareness to families in search for answers and understanding.