Walk for Strength 2023
Won’t you join Matthew on his annual Walk for Strength?
As many of you know, in 2016 Matthew was diagnosed with a rare genetic condition called creatine transporter deficiency. When he was a baby failing to thrive, we didn’t know if he would ever sit up or crawl, much less walk. But who’s to say what’s impossible? Despite his many systems-wide struggles, he kept trying, and finally took 10 steps in a row when he was nearly 3 years old! He now hikes for hours, plays soccer, and enjoys school. He still struggles. Seizures, motor dysfunction, and severe GI issues are part of his life and he cannot communicate verbally. Currently there is no cure for CTD, but ACD is working hand in hand with brilliant researchers around the world, funding their promising research.
We are so excited to join together with friends and family again this year on Team Matthew for the Walk for Strength as we walk to cure creatine deficiencies! We will meet near the playground at Kate Sessions Park on June 10 starting at 9 a.m. We will have face painting for the kids, snacks and coffee, and the kids can play at the playground, then we will all go for a walk around the park and enjoy the beautiful view–it will be a super fun morning!
*Team captains will be notified of your registration and your donation.