Team Matthew

Walk for Strength 2022

Won’t you join Matthew on his annual Walk for Strength? We will be on a family vacation in Waikiki on August 20th, but will be walking to show our strength in support of the Association for Creatine Deficiencies annual walk.

As many of you know, in 2016 Matthew was diagnosed with a rare genetic condition called creatine transporter deficiency. When he was a baby failing to thrive, we didn’t know if he would ever sit up or crawl, much less walk. But who’s to say what’s impossible? Despite his many systems-wide struggles, he kept trying, and finally took 10 steps in a row when he was nearly 3 years old! He now hikes for hours, plays soccer, and enjoys school. He still struggles. Seizures, motor dysfunction, and severe GI issues are part of his life and he cannot communicate verbally. Currently there is no cure for CTD, but ACD is working hand in hand with brilliant researchers around the world, funding their promising research.

Who’s to say impossible? Not the researchers, not Matthew, and not his parents or ACD. Hey maybe you could join us in Waikiki! Who’s to say what’s impossible? 😉 But if not, consider joining us virtually or supporting ACD in any way you can. Thank you!

Register below and select “virtual” to have your t-shirts shipped to your preferred mailing address.