As you know, Melly has a rare, currently untreatable, genetic condition called Creatine Transporter Deficiency. There are only about 350 cases in the world—all children that will not lead a normal life. It’s been 21 years since CTD was discovered and the needle is finally starting to move on research.
Join us for ACD's seventh annual Walk for Strength and raise awareness for Cerebral Creatine Deficiency Syndromes! Register to walk with Team Melly's Smile. Our walk will be virtual, so join us from wherever you are on August 20, 2022. Be sure to take pictures!