We are recruiting 20 families — Claim your seat at the CCDS research and drug development table!
ACD has been granted a $238,000 Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI). This award will empower CCDS families to engage in research and develop a core outcome set that is aligned with what really matters to our families. Watch this short video to learn about the PaReNts Project and how it will give 20 families an opportunity to shape future CCDS research!