What are the PatientStrong grants?

The PatientStrong Grant Program was established to assist patients diagnosed with a Cerebral Creatine Deficiency Syndrome (CCDS) by providing funds to help with associated medical expenses.

These critical medical expenses are limited to:

  • Medication(s)/Supplementation(s)
  • Health Insurance Co-Pay
  • Physician Specialty Visits
  • Hospital Stays
  • Nursing Care
  • Medical Equipment

PatientStrong does NOT fund car payments, rent/mortgage, home repair, utility bills, childcare, food, clothing, toys, furniture, tuition, fences, technological devices, or bills to local stores.

What is the criteria to apply for a grant?

Applications must meet certain criteria to be considered for a grant. Please review the application criteria carefully before applying. The criteria can be found here.

How does the grant work?

If a grant is approved by the ACD Board of Directors, the grant will help pay for approved medical services/items after the family’s commercial health insurance plan submits payment, if any. Grant funds are not paid to the family or the child outright.

View Online Application

How the reimbursement process works:

  • Qualifying patients gather all required documents
  • Complete and submit online application
  • Selected grant recipient will be notified
  • ACD reviews submitted expenses and submits payment directly to the provider
Next Grant Application DEADLINE May 31, 2016