As you know, our son has a rare genetic condition called Guanidinoacetate Methyltransferase (GAMT) Deficiency.
Last year, our parent group raised $94k for Gene Therapy research and drug development. While this may seem like a lot, much more is needed to fund these expensive projects. This year, we are aiming to raise $250,000 to drive research for Cerebral Creatine Deficiency Syndromes in 2022. We know this is ambitious, but we are confident that we can achieve this goal with your help!
This holiday season, we invite you to give alongside us. Our son needs heroes! Every little bit counts and makes a difference.
Happy and healthy holidays!