10:00AM, Saturday, June 15, 2024
Bluffdale City Park
2400 W 14400 S
Bluffdale, UT 84065
We will start check-in at 9:30am and walk at 10.
Activities for children and a light breakfast will be provided.
We can’t wait to see you at our 9th walk!
Questions? Contact ACD.
Sam and Louis are siblings in Utah that share a genetic disorder- GAMT. Sam was diagnosed at age 5 after years of therapies and misdiagnoses. Because of her late diagnosis, Sam is intellectually disabled and has epilepsy. Louis was diagnosed at birth, thanks to Sam! Louis loves hockey, baseball, video games, and is in a “typical” classroom. ACD is a 501c3 nonprofit founded to help other kiddos get diagnosed with GAMT early, educate clinicians and families on creatine deficiencies, and drive research to find better treatments for GAMT and AGAT and a treatment for CTD (currently not treatable)!
If you cannot make it to the walk, please consider making a donation in support of Team Sam & Louis—thank you!