“A Deeper Understanding of CCDS” – Sarah Young, PhD, FACMG
“A Deeper Understanding of CCDS” – Sarah Young, PhD, FACMG Did you know the Association for Creatine Deficiencies has an…
“Family Vacation” – Shelly
“Family Vacation” – Shelly We just had our first big family vacation. Overall it really was great, we had good…
“Life With CTD” – Chelsi
“Life With CTD” – Chelsi Hello, my name is Chelsi and I have CTD. 23 years have come and gone…
“Special Education” – Celeste
“Special Education” – Celeste Wow! I’m still processing all of the things I learned from the 2018 conference in Austin….
“It’s so Austin…” – Shelly
“It’s so Austin…” – Shelly “It’s so Austin…” I heard that sentence a lot the weekend of July 27-29. I…
“Got to Get You Into My Life” – Amy
“Got to Get You Into My Life” – Amy After learning about our son’s Creatine Transporter Deficiency (CTD) this past…
“#MyGivingStory” – Jerry
“#MyGivingStory” – Jerry This story was shared with #MyGivingStory in connection with the Giving Tuesday initiative. #MyGivingStory shares the stories…
“Why Us?!” – Laura
“Why Us?!” – Laura Sometimes it feels like everything just piles up – from the challenges of being diagnosed, seizures,…